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Moonrise: One Family, Genetic Identity, and Muscular Dystrophy
Moonrise: One Family, Genetic Identity, and Muscular Dystrophy Penny Wolfson 0312289081 9780312289089 Moonriseis Penny Wolfsons first-person account of her family, her son Ansel, and his progressive disability, caused by the genet
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Moonrise: One Family, Genetic Identity, and Muscular Dystrophy by Penny Wolfson

Moonriseis Penny Wolfsons first-person account of her family, her son Ansel, and his progressive disability, caused by the genetic disease Duchenne muscular dystrophy. The journey begins when he is born and deemed a particularly beautiful and magical baby, continues with the alarming possibility, at the age of two, of wrongness, takes us through the diagnosis of disease and prognosis of early death, and brings us to his adolescence, where his parents are never sure if the moon is rising or setting over his life. As she traces her sons development and the impact of his disability on her worldview, she embarks on a quest to understand scientific advances and their implications. (The gene was isolated at approximately the time Ansel was diagnosed.) She also explores special education, giftedness, prenatal testing, and the genetic links she shares with her mother, sisters, and son. Questions about the disease-causing mutation persist: What does knowledge of the self on a molecular level mean? Is genetic self-knowledge our goal now, much as knowledge of the psyche was in the last century? Moonrise is an essential contribution to the dialogue about genetics, as well as a deeply human story about a remarkable child and his family.

Author: Penny Wolfson

Language: English

Edition: 1st

Binding: Hardcover

Pages: 256

Publisher: St. Martins Press

Publication Date: 2003-03-26

Our Price: $7.99

Quantity:2
ISBN: 0312289081


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Penny Wolfson (Edition: 1st) Hardcover


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